Katie Update

I am happy to report that our ENT must know what he is doing (we know he does, and actually he is great)....the antibiotics seem to be working for Katie. Her nose and sinuses seem clearer than they have been in months. She has been on the "mega-dose" for one week now - 5 to go. That seems amazing to have her on antibiotics that long - but if means not having to put her under anesthesia to "flush her sinuses" (doesn't that sound like a great time) I will continue to (slightly) battle her to get the antibiotics down. :)

We are also changing around some of her other meds - so we are are having some good days and some not so good. I have talked about risperdal before on this blog -- Katie has been on it for probably 18 months now -- and as a result has gained about 25 pounds - not a great side effect of the med. We are trying to reduce her to nighttime only on the risperdal and are going to try an ADHD med for her during the day. I wasn't sure how I felt about this -- especially after I read a few of the possible side-effects (and let me just tell you they make weight gain seem like a walk in the park) -- but after a good talk with Katie's neurologist, and realizing that this new med is in and out of her system in 10 hours - and if we don't like how she reacts to it, we can just choose to stop giving it to her. Risperdal is different in that it builds up in their system over time and it isn't really safe to just take them off of it cold turkey.

We are still in the process at looking to change Katie to the new school for their start of the year in July. We have 2 visits and an IEP to try to squeeze into the next 4 weeks - so I'm not sure how all of that will unfold, but we would like to get Katie's meds regulated before the switch .. so basically, we have our hands full for awhile... I'll keep you posted.